Fiona Porch’s creativity flows even through darkest hours of Kniest Dysplasia

A RARE form of dwarfism hasn’t stopped Fiona Porch from achieving her dreams. She’s now asking for help funding her second solo album.

Fiona Porch is crowd-funding to create her second solo album. Picture: Melvyn Knipe

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LIFE hasn’t been an easy ride for Fiona Porch. Now in her 30s, a little wiser and facing some big decisions with her health over the coming few years, she’s keen to put her thoughts and experiences into song.

For years she has been writing poetry. She turned to writing lyrics in her teens and it has got her through some of her darkest days.

Ms Porch has Kniest Dysplasia, a rare form of dwarfism. There are less than 200 cases in the world. She’s only one of three in Australia.

With one album under her belt, Ms Porch has a plan for her second called Soul Cried.

She’s working with Sydney music composer John Ertler to get the project off the ground and is

now crowd-funding to make her dream a reality.

Ms Porch wants to take her finished product to hospitals to help inspire children.

Fiona Porch has a rare form of dwarfism and wants to motivate others to pursue their dreams. Picture: Melvyn Knipe

With just a few days left of her crowd-funding campaign, the Prestons woman wants to inspire others.

“I want nothing more than to share my story with the world through my music, inspire others especially those that have disabilities to believe in themselves, and to follow their dreams,” she said.

The former Bossley Park High School student said she’s also in the midst of writing a book. It’s been on her medical and life journey since she was 10. Ms Porch has had countless surgeries and spent months in hospital.

“It’s hard having a rare condition. Decisions are sometimes made with little knowledge about what could go wrong,” she said.

“I’ve definitely felt like a guinea pig at times.”

Ms Porch said at birth there was an inkling she may have had something, but she was of normal size and stature.

“Ironically, I was taller than my sister, who doesn’t have dwarfism.

“But if you asked me if I’d still want to have Kniest Dysplasia, I’d still want to be me, just take away the pain.”

Details: pozible.com/project/second-album-soul-cried