Heartbreaking plea to save toddler Brax Davies in need of kidney transplant
Even the gentle touch of his mother’s hand has proven too much for a little South East Queensland boy as he endures painful swelling and discomfort while he waits with the hope of a lifesaving kidney transplant.
Logan
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It’s any mother’s worst nightmare, to see their child fight for life while watching helplessly from the sidelines.
What began as a bad dream has transpired into a reality for Pimpama mum Krystal Davies, says family friend Kristy Shaw.
A little boy described as “caring,” “cheeky” and “funny” by his sister Laylah, 7, is up against the battle of his life.
Kristy said Brax, 2, hasn’t had a great start to life with a Kidney transplant his last hope of survival.
“He was born with Hirschsprung’s and in surgery twice before he was eight weeks old which led to sepsis and being put into an induced coma, then flown to Queensland Children’s Hospital for dialysis,” she said.
Hirschsprung disease is a birth defect in which some nerve cells are missing in the large intestine, so a child’s intestine can’t move stool and becomes blocked.
“Brax has had multiple hospitalisations during the past two years and now suffers from chronic kidney disease as a result.
“The dialysis process hasn’t been pleasant for mum or bub and multiple wires and tubes are running through this precious little which is heartbreaking.
“Brax has also suffered from dangerously high blood pressure which is causing issues with the arteries to his heart, which could lead to him needing a stent.
“The doctors are trying to use different medications to bring it down, but every medication used seems to counteract with something else, causing further issues for Brax.
“He contracted Respiratory Syncytial Virus and pneumonia while in hospital and on top of that suffered a mini stroke, at (aged) 2. The stroke caused slurred speech and unstable walking, however after a recent MRI, the doctors are confident he will make a full recovery.”
Kristy said Brax was retaining so much fluid that his little eyes could barely open due to being so swollen and his skin was tight.
“He is uncomfortable and even at times pushes mummy’s hand away as he doesn’t want anyone to touch him,” she said.
“The doctors say Brax will be on dialysis for a long period and are looking at inserting a permanent line through his chest due to his veins not being strong enough in the side of his neck, where they have previously been placed.
“Even when Brax is released, he will be going home on dialysis until he is well enough for his little body to accept a kidney transplant, once they source one and the family has no indication of how long this could take.
“I’ll tell you what he’s a little trooper and has the nurses wrapped around his fingers.”
Kristy said his mother Krystal was trying her hardest to pull it all together and find the balance between being with Brax in Brisbane and spending time back home in Pimpama with her daughter Laylah.
“In addition, the financial impact is starting to take its toll on Krystal and her family. Unfortunately, the day-to-day bills don’t stop, so together with the current cost of living and trying to make ends meet with a massive fuel bill and other rising expenses, times are extremely rough,” she said.
“It was one thing for these hard times to fall so close to Christmas, but then Krystal’s hometown was damaged by the tornado, resulting in five days of power loss and loss of perishables.
“Luckily there was minimal damage to Krystal’s property other than a damaged pool, gazebo, and trampoline.”
In response, Kristy set up the GoFundMe page with $110 raised of a $3000 target thus far.
“Krystal isn’t one to ask for help and has struggled with the idea of doing so,” the message read.
“She is struggling with her daughter Laylah going back and forth from Southbank, we don’t know how long this will go for.”