Kylee Davie and 10-year-old daughter wait for National Disability Insurance Agency help

Mum Kylee Davie and her 10-year-old daughter have been left waiting for National Disability Insurance Agency approval for bathroom modifications for more than a year.

Kylee Davie and her daughter Veronika, 10. The Davie’s have had many hoops to jump through with the NDIS to get their bathroom renovated to help with Veronika's declining mobility. Picture: MATHEW FARRELL

EVERY day Kylee Davie lifts her 10-year-old daughter in and out of the bath as they continue to wait for approval by the National Disability Insurance Agency for bathroom modifications they applied for well over a year ago.

Veronika Davie lives with cerebral palsy, Down syndrome, epilepsy and autism and cannot stand up in a shower safely.

With their original plan with the NDIS they applied for modifications to the bathroom to allow Veronika to shower safely so her mother no longer has to lift her into and out of the bath, which Ms Davie said was undignified.

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“I’m technically one lift away from hurting myself, which is at the forefront of my mind,” Ms Davie said.

“It’s a very drawn out process and when you’re a mum, a wife and technically a carer and an employee, you’re spending all your time advocating for your child through a thing that is supposed to have the support there.”

Ms Davie said the more recent rejection of their application said they had to get the builder to requote the modifications, but Ms Davie said the builders had already said they did not want to do that.

“They have to itemise everything down to specific taps, and all that kind of other stuff,’’ she said.

“We’ve already been told the builders won’t do that, so we’re going back to ask for funding for the builders to requote. It’s like the goalposts keep moving.”

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Ms Davie’s struggle to receive funding for modifications for safety reasons follows complaints of people living with or caring for someone with a disability reported in the Sunday Tasmanian.

Ms Davie said their relationship with the NDIA had not been all doom and gloom, however, and the support she had received, including funding for therapy, had been “great”.

“We’re grateful for the support we do have. We’ve got great therapists, and essentially someone to pay for her therapists,” she said.

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Originally published as Kylee Davie and 10-year-old daughter wait for National Disability Insurance Agency help