Amie Rohan designs tutu in honour of baby Willow to raise funds for Red Nose Australia

Amie Rohan is honouring “angel baby” Willow, revealing how she suffered separation anxiety from her surviving twin daughter.

Amie Rohan with daughters Bella and Sadie, who are wearing the Willow Rays in memory of baby Willow. Picture Rebecca Michael

Amie Rohan is finding new ways to honour the memory of her “angel baby” Willow.

Three years ago she and ex-husband, Geelong footballer Gary Rohan, lost their twin daughter Willow Nevaeh five hours after birth from a rare neural tube defect known as anencephaly.

Willow is survived by her twin sister, Bella, 3, and Sadie, 1.

“It is still raw and everyone heals differently but I feel like from the moment I found out about her I wanted her legacy to live on in the hope of helping others who have been there and bottled up emotions,” Rohan said.

“There’s so much healing that comes from sharing. There was a moment where I wasn’t opening up to how much I was struggling and I had separation anxiety from Bella.

Amie Rohan designed the red tutu dress.

Amie Rohan with Bella and Sadie for Red Nose Day.

“I didn’t want to stay stagnant, my girls are growing up and I’m getting there one day at a time.”

Rohan has partnered with children’s ballet brand Flo Dancewear to release a bespoke red tutu dress to raise awareness around October’s Pregnancy and Infant Loss Awareness month.

All proceeds from the Willow Ray tutu dress will be donated to Red Nose Australia.

“It’s a bit of a nod to my dancing past, I danced for 10 years,” Rohan said.

“It’s really special watching the girls dancing around in a tutu I created, it takes me back to my childhood. It’s quite tulip, a bit softer red. I wanted to relay it back to Willow because I always say she’d be calm and I really want to reflect her.”

The Willow Ray tutu is available from flodancewear.com.au and theiconic.com.au