Adelaide girl Jazmin Farr’s battle with the rare condition complex regional pain syndrome

An extremely rare diagnosis has left a little girl suffering in so much pain she says she “can’t do this anymore”, and her mum wishing to switch places with her.

Jazmin Farr suffers from an extremely rare pain condition called CRPS., Picture: Supplied by family

Mother Amanda Farr would trade places with her daughter Jazmin in a heartbeat to take away her baby’s pain.

At only eight years old, Jazmin began suffering with a very rare neurological condition called complex regional pain syndrome (CRPS) after she broke her ankle jumping on her trampoline on Boxing Day, 2020.

Now, aged 12, after three years of suffering, she said she “can’t do this anymore”.

“This has definitely been the hardest and most awful thing to sit and watch Jazmin suffer through,” mum Ms Farr, 41, said.

“As her mother, to feel completely helpless and want nothing more than to take it all away, I would trade places in a heartbeat.”

Jazmin Farr suffers from an extremely rare pain condition called CRPS. Picture: Supplied by family

Jazmin’s family is trying to raise money to bring Jazmin to the US to a specialised clinic for her condition. Picture: Supplied by family

The Advertiser spoke to Ms Farr in September last year about Jazmin’s condition.

She didn’t know it then but Jazmin would go on to suffer a horrific flare up after having issues with her bowel.

She was in hospital for a week.

“These issues triggered off extensive pain flares with Jazmin’s CRPS and sent her nervous system into a heightened state,” Ms Farr said.

“She lost 2kg in four days – her body did not cope very well.”

Now Jazmin has been offered a place at a specialist pain clinic in the US, the answer to her parents’ prayers, but the Woodcroft family cannot afford the treatment.

Jazmin was hospitalised for a week following issues with her bowel. Picture: Supplied by family

Jazmin suffers unrelenting and constant pain, considered by The McGill Pain Scale to be worse than childbirth, never having any reprieve.

Alongside her pain which feels like her bones are being crushed or stabbed with a knife, she suffers swelling, bruising, discolouration, extreme temperature changes, fatigue and insomnia.

“Even on a ‘good day’, pain is always present and extremely unpredictable when it comes to CRPS,” Ms Farr said.

“Day to day life with CRPS is extremely unpredictable, you never know what the day will bring, pain level change, literally from minute to minute.

“It is hard to plan for events or celebrations, as Jazmin’s pain doesn’t just stop because it’s Christmas or her birthday.

“All Jazmin asks for is a day without pain, just one day.”

Jazmin writes music and sings to cope with her unrelenting pain. Picture: Supplied by family

Now the 12-year-old has been offered a placement at The Spero Clinic, a CRPS specialist pain clinic in the US, for the end of February.

The Farrs have been fundraising to reach their goal of $200,000 to afford the treatment. Currently they only have $77,000.

“In order for us to be able to accept this start date for Jazmin, we need to have reached our funding goal,” Ms Farr said.

If you’d like to donate, you can here.

Originally published as Adelaide girl Jazmin Farr’s battle with the rare condition complex regional pain syndrome