Immense pain can’t keep tough little Amelia from dancing

Amelia Page’s skin is so fragile it shreds with the slightest touch, leaving her tiny feet left so raw and painful that she sometimes needs a wheelchair to get around. This is what it’s like for her to live with this rare genetic condition.

AMELIA Page’s skin is so fragile that it shreds with the slightest touch. But the seven-year-old dynamo refuses to let blisters and wounds stop her from doing what she loves and that’s physical culture, a combination of gymnastics and dance.

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Amelia suffers from a rare genetic condition epidermolysis bullosa or EB and her tiny feet are so raw and painful that she sometimes needs a wheelchair to get around.

Amelia Page, 7, has EB, a rare and painful condition that causes her skin to shred but she stays active by dancing. Picture: Steve Pohlner

EB has been likened to living with third degree burns and the sores need constant dressing.

Human skin has layers, which are usually held together with a protein that acts like a glue.

EB occurs when these proteins are missing or reduced and results in skin breakdown.

“Amelia has an unbelievably high pain threshold and sometimes she is amazing how she pushes through.

“The reason she got into physical culture is that shoes are not required and that works for her.” Picture: Steve Pohlner

“She has won some trophies in physical culture but it can take great effort for her to get through routines. The reason she got into physical culture is that shoes are not required and that works for her. She has tried ballet and while she loved in the shoes caused her sheer agony,” mum Shannon said.

While her feet are most impacted Amelia’s skin breaks and blisters all over her body. There is no cure for EB.